Welcome to the Cyclothymia Collective, a personal website about the neurological condition (or "mood disorder") called Cyclothymia. I am not a doctor, nor do I play one on TV. The content of this site is the result of my own online research and personal point of view. Please stop by the forum, by far the best part of the site.

Thursday, September 11, 2008

Kind of Mixy

I've been very busy at work, editing, editing and doing more editing. This is the first year my brain hasn't gone completely fried as a result. I credit the Wellbutrin.

I am, however, noticing that I am entering into a mixed state. It's not that I have been hypomanic, just really focused for six weeks and now that I am reaching the end of the pile, I am starting to come down.

Here's how I feel:
I feel like I have a slight buzzing in my body.
I'm concerned about the neighborhood (peaceful neighborhood, no reason for fear)
Worried about work, political stuff...when there really are none
Am of the opinion that what I do is bullsh*t.
General anxiety.

It's mild, but they are all there. Time to break out the Xanax. I estimate another three days of heavy work and then I can do some relaxing....unless one of my other bosses decides to dump on me :P

Wednesday, July 16, 2008

MIddle of July

It's been months since I updated. I have a pretty good reason: I've been having a really good time and have not wanted to think about cyclothymia. I am doing very well on my mix of Lithium and Wellbutrin. I'd say my life has changed radically. I can think, I can feel, I can see and I can create.

I replaced Zoloft with Wellbutrin in December in an effort to see if it would bring some peace to my chaotic mind, on the hunch that I was ADHD. Where I live there are only one or two ADD/ADHD specialists, and no one is doing adults as of yet, so I was really on my own about it, reading and reading online. I built up a case for it and presented it to my psychiatrist and he agreed to try it (Wellbutrin is supposedly the drug of choice for Bipolar people who have ADHD/ADD). Within three day I felt improved, and it has just been getting better.

I spent most of the Spring working on my novel when I wasn't at work or parenting. This was a joyful experience for me. It was like being 11 or 12 again, before the neurology set in. I have been writing every day now for the last seven months. I won't claim to be a good writer; just being abke to write at all feels very good. I feel like I've stepped out of a time machine, thirty years older.

I've also lost 25 pounds. No more carbohydrate cravings, and an ability to plan and follow through on exercise have made it effortless. I have hooked up a laptop to my treadmill and do my mindless surfing there-- and writing, of course.

Sunday, March 23, 2008

Volunteerism


I was talking with my psychiatrist night before last. We were on a boat cruising up the Bosphorus for dinner at a fish restaurant at the mouth of the Black Sea with a group of our friends. I hadn'T seen him for a few weeks so he asked how I am. As in how are you?. I didn't feel it the place to launch into a description of my latest dysphoric episode, so I limited talking about how the addition of Wellbutrin (for ADHD symptoms that do not overlap wih BP) has given me real, sustained focus for the first time in my life. One of my examples was converting this site into a blog and trying to write about BP from the Cyclothymic's perspective. I told him the forum now has about 7000 posts and what a helpful place it has been for me, and I hope for others.

He asked me if I would be interested in getting involved with the county's first Bipolar foundation, which is patient-oriented and seeks to provide support in a country where there is very little support for mental issues. He mentioned acting as a lay source of information/personal experience and maybe peer counseling.

I said no, I'm too busy with my three* jobs, my teenager, my basic life, my horse, my online stuff and rewriting my novel. As I listed things off, sitting there at the back of the boat with the cold wind whipping through my hair as we motored past a fifteenth century fortress, he laughed. We both laughed. I have managed to cobble together an interesting life despite everything.

Privately It thought, "Ack, what a horror volunteering as a peer counselor in person could be." It is one thing to run a forum. On bad days my forum mates seem to pull through (thanks!), but going in to a group of manic-depressives in a dysphoris state could be...nerve wracking. Add of course the fact that Turkish is not my native language, and that I am sensitive to the whole foreigner-knows-best scenario. Many Americans I meet over here seem to be out to save the world, and set about saving Turkey first, which is laughable. In almost all cases the give up after about a year and go home.

I have just one friend who really is changing the world, one seed at a time, in the struggle against the industrialization of agriculture. She is great. I volunteer as her blog master. And you know what? She has some serious depression issues...maybe that's where we click. My mood swings, or shall we say "wildly varying levels of enthusiasm" make it difficult to get involved in the flesh in volunteer work. For a long time I wanted to raise money to buy wheelchairs, but it never happened. But then I met someone who worked at the Foundation for the Disabled and I volunteered to edit their English (website, publications to the EU). Since then I have done other volunteer editing and webwork. I've finally found a way to fulfill my desire to help. The motto at which I have arrived is, "each in her own capacity."

I also volunteer as the photographer for the National Dressage Federation, but that is not out of any kind of noble volunteerism, just a passion for photography and horses.

Anyway, I am going to continue to consider my doctor's request. Maybe some day I will get there. Maybe after my kid goes off to college.


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*I would like to qualify "my three jobs." I have been on the staff of one Institute for twelve years and two years ago added administrative and organizational duties in another Institute (I go between them) and then work on the staff of a leading academic journal as the English language editor. I work about 30 hours a week eight on the of the year and about 70 hours a week during peak editing times.

Thursday, March 20, 2008

Lithium and creativity

I have had the nicest week. No work at the office, so I have been riding my horse and working on my NaNoWriMo novel re-write. I may have mentioned before that while I wrote compulsively as a teenager, I had never finished a piece of fiction before this. I stopped writing fiction in college and turned to technical writing. NaNoWriMo was great because I had to complete a 50,000 word novel in 30 days. And I did it, with two days to spare.

Never having finished anything before, I have no experience with rewriting a piece of fiction. I had no idea that it could be so engrossing, and so much fun. I just came to the part where the main characters have to part and I got choked up. Silly, but true. And surprising.

A whole new world is opening up for me. I have always been creative. I have made quilts and had photographs published, designed websites, and done other thingsbut none of them has been as exciting as this.

When I was 7 years old my father brought home his Smith-Corona typewriter and I fell in love. I started writing plays and then advanced to longer pieces, some of which I did finish...but when the BP kicked in around 8th grade the writing ceased to be a reasoned activity and became a love-hate-addiction kind of relationship. I was in the habit of writing, but went through periods when I couldn't write, and then doubted everything I had written. And then in college I just gave up. It was just too hard.

Twenty-five years have passed. I've been on Lithium for eight years now. The general bellief is that Lithium will kill your creativity, but I am no so sure about that. In these eight years I have taught myself web design and have created websites for work, charities and hobbies; I have gotten reinvolved in photography and learned a great deal about Photoshop; I have bought a horse and started to learn the complex discipline of dressage, and now...now I am rewriting MY NOVEL.

It may not be a great novel, but it is MY NOVEL. It is something I had given up planning or hoping to do. Having evidence of this thing which for so many years I wanted to do but was unable to do, is thrilling.

I owe it all to being on meds. Maybe other mood stabilizers can do the same for people; Lithium has done this for me. I wanted to write about my experience with it in order to put a positive story about it out there to let people know it can happen. Lithium doesn't mean saying goodbye to creativity.

In a lecture in 2000 at the Manic Depressive Association of Boston (highlights of lecture here "Dr. Frankenberg presented a study of bipolar artists that were asked how their creativity fared now that they were taking lithium. One-third said their creativity was great, one-third noticed no difference, and the remaining one-third thought it had suffered."

Friday, March 14, 2008

My ADHD/BP mix

I have just been through my first full cycle while on my new anti-depressant. I switched from Zoloft to Zyban after I read that Zyban is a good choice for treating ADHD. Once I became fairly stable, I became aware that even when on an even keel, my mind was always racing. On the forum someone started talking about ADD/ADHD and then I found an online test for it and several of us took it. My forum mates had scores like 24, 34, 42. Mine was 83. Which was the beginning of my suspicions.

Last fall my daughter, who is 15, started commenting on how distracted I was and then I became aware that I was spending almost all of my awake time online or "engaged". I would kind of feel panicky when I couldn't be with my computer. It wasn't an addiction, but I realized that it was not normal or healthy. There were other symptoms (constantly jiggling my leg, for example). I started researching ADD/ADHD in earnest, and what kind of meds I could try as a person with Bipolar. The usual ADD drugs, Straterra and Adderall can sent a person with BP into hypomania. The only drug recommended for people with BP was Wellbutrin (Zyban).

When I had an appointment with my pdoc, I laid out my case. He had been talking about switching my antidepressant anyway, so when I suggested Zyban he said yes. He is not an ADD/ADHD expert. Where I live there are very few of them, and even fewer (like non) specializing in adult ADD. Which is why I did my own research. Because he might have switched me to Zyban anyway, trying it for ADD/ADHD seemed a reasonable move.

SO I've been on Zyban, with Lithium, for two and a half months. This is what I can say: I am able to focus for the first time in my life. I can really see my environment, listen to music, talk to people and be really present. When I am working, I can just sit down and get things done. It's amazing. I have started taking an interest in my appearance (I've always been well groomed; but for a long time I didn't care about fashion, trends. I felt like an outsider looking in).

On the negative side, because I can really focus now, when the dysphoria came along I could really feel it. It was more intense than it ever has been because I could pay attention to it. Before, when I felt like there were always multiple television sets on in my head at the same time, dysphoria was just another television set. There would be a crowding of the ADHD stuff (overbusy mind, distractibility) with the BP stuff (nasty negative emotions). It was always a confusing, disheartening time. So take out the televisions and leave the BP and...woooooah....unpleasant!

Definitely need to go have my blood checked to see what is up with the Lithium. In December it was on the low side. Hopefully, it is still low and upping it to get within therapeutic range will be easy. If not, then I will have to ask for a different mood-stabilizer.

So the Zyban is good for the ADHD, not so good for the BP, but maybe checking my Lithium levels will fix it.

Thursday, March 13, 2008

At last....

I felt my mood rising this morning and pop into what I think of as its proper place. Cycle complete.

Tuesday, March 11, 2008

The Perils of BP Blogging

I forgot all about you. Well, not entirely, but I have had no interest in posting. I've gone from the Mixed State of ten days ago to a subdued, but anxious and tired, BLAH. I cling to the present and can't think of the past. The recent past was painful. While I no longer feel shame at having lost control (diagnosis helped this tremendously) I feel it is best not to look back but to concentrate on the present, which I can handle, and a tiny bit of the future.

I am fortunate to have a job that I am able to do (editing) not matter what my state. When I am hypomanic it can be a bit tedious, but when I am like this, it is my life preserver. The mechanical checking of each sentence for accuracy and meaning, and the information enclosed in each one, is calming, and reassuring. After I completed the final draft of the manuscript of an academic journal I have been editing for 8 years and was delivering it to my boss, however, my general level of anxiety turned into a slight and constant feeling of panic...when I had no reason to feel so. My work is solid. My boss (a woman) loves me, we are a good team. It may have been that after having focused intensely to finish the draft, I set off a bit of hypomania, which ramped up the anxiety.

I am also editing the novel I wrote during NaNoWriMo (National Novel Writing Month). This has been interesting on a few different levels. This was my first NaNoWriMo attempt, and I succeeded beyond my wildest expectations. I hadn't written any fiction in about 25 years. I could never finish anything. I credit Lithium entirely for making creativity possible for me. I had no idea how it would go, but it really flowed and I found the 1663 word daily minimum to be easy to reach. I was not clearly hypomanic during that time. I had been planning to write about a cholera epidemic in Istanbul in the 19th century, but a huge pile of work arrived the last week of October and I considered not doing it at all. Then my daughter said, "Write Harry Potter fan fiction!" and that seemed like comforting escapism,so I wrote about the HP world, but set in a school in Istanbul.

So now I am revising. This was fun while I was in a Mixed State-- I think I liked the escapism of it-- but now I feel it's tedious, which is a shame since my characters deserve better.

This is an account of how my attention ebbs and flows with my mood swings. As I said above, Lithium has made it possible for me to do this. Just the fact that I am editing my own work-- I have never been able to do that (besides web writing) because I was never able to finish anything. It is great fun, tweaking the sentences, adding nuance. I now see what writing is, where the craftsmanship comes in. Before, I thought writing was about riding the hypomanic beast, waiting for "inspiration" to guide me. The process was mysterious and...well, I produced nothing. Now it seems I can write when I like, with only small ups and downs. It's very exciting. Editing the manuscript is engrossing, not in the way the writing was, but in the process of fixing holes in logic and trying to give life to the dialogues.

Next year I want to write something all my own. When I tell people I wrote a novel, they go "Oooooh, wonderful!" and when I explain that it is HP fan fiction, the go blank. I'm taking notes on the epidemic (actually my MA thesis was about contagious diseases in the 19th century Ottoman Empire).

So, you see, I am fine, just turned inwards. At this point in the game, maintaining my friendships is very difficult because I don't think of my friends at all, or if I do, it is with anxiety, worrying that I have ignored them for too long, worrying that I am not attentive enough, which makes me feel like throwing in the towel on everything. I feel the same way about blogging.
Just so...Right now I am debating whether I should go riding. I agreed with a friend to take our horses out into the hills for a couple of hours today, but I am feeling so indifferent, which shows my state of mind because I LOVE riding outdoors. Maybe the air would do me good. My anti-social impulses never involves animals. Unless it is my Siamese cat trying to climb into my shirt while I am trying to type. We've started leaving the heat off except for the evenings, so she she views me as the next available heating system.